You can view updates at http://www.caringbridge.org/visit/simonelayne
posted by Melody
Simone’s surgery was yesterday 5/21. Came through the surgery pretty well but started bleeding a lot from her chest tube upon entering ICU. Got that under control and she was stable until the middle of the night when her blood pressure dropped, heart rate went way up, became feverish(temp of 103) and she started having trouble with her mixedvenous gasses. She gained about 2 lbs with swelling. Seems to be stabilizing a bit again now, but it’s unlikely she’ll come off the breathing tube today as we’d hoped. They did take her off the paralytic, so she’s moving now and opening her eyes a little. The movement should help with her blood pressure. Will try to keep folks updated,but it’s difficult to get away from her room and Facebook is blocked at the hospital. Setting up a Caring Bridge web site andwill probably post the url for that later.
Our experience at Riley has been wonderful, though. ICU nurses arranged for a Ronald McDonald room for us right in the hospital.We had planned to sleep in the lounge. Hoping to get another one for tonight.
posted by Mel
One year ago today Vanessa and I showed up at Dr. G’s office around 7 AM hauling a metal tank. After 17 failed IUIs, a failed IVF, and a miscarriage after IVF using Vanessa’s eggs, I had undergone immunological screening that came back positive for alloimmunity. The RE said we should try IUI again w/the addition of aspirin and L0ven0x, so we made one last attempt, simultaneously shelling out $4000 to begin the process of domestic open adoption.
I was going through the motions. I was sick of injections, sick of the progesterone rollercoaster, sick of hoping and waiting, finally beginning to accept that no baby would ever come through my body. There were 5 follicles in play that month (had taken Fem@r@ and F0ll!st!m), and I remember poking fun at myself for ever having been worried about high order multiples during previous IUI cycles where I’d had far more follicles than this and not gotten pregnant.
One of those follicles contained the egg that got together with the contents of that tank and made this:
posted by Mel
I think I’m getting really boring. All I blog about is this kid. I’m completely in love with her. Feels good to be in love with her because for the first nine weeks or so, I wondered if I was really cut out for parenthood at all.
Simone had a good weekend– lots of time spent outside, very little refluxing. We’ve started a new anti-reflux medication– Pr!l0sec. Seems to be working better than the Z@nt@c did. She hasn’t had a weight check in a couple of weeks but seems to be gaining steadily. She is even out of Newborn diapers and wearing 1s now. Holding my breath that we have no more unexpected trips to the hospital before her surgery.
posted by Mel
It will happen on May 21st. She was 8 lbs 14 oz yesterday, and the cardiologist is happy enough with the velocity at which she is now gaining weight that she felt comfortable setting it up. I feel a little guilty that this will come as a complete surprise to the little elf, but maybe that’s best. I am both looking forward to it and dreading it. It’s going to be awful to see her covered in tubes. It chills my blood to think that someone is going to be cutting through her rib cage. On the other hand, health professionals and my incessant googling tell me that she will be a new baby when this surgery is over. She will breathe without laboring, and she will grow. We can finally get her of all of these damn medications (except our old friend Z.antac). Within a couple of weeks she will be so much less fragile than she is now. She won’t have to suffer through the summer heat with a heart condition. And maybe just maybe the nurses at the children’s hospital will stop recognizing us in the elevator and on the street.
Still not a lot of time to blog, but Simone is nearly 8 lbs today. That makes me happy enough to post a picture. I’ve found an antidepressant that seems to work for me, have returned to work, and things seem to be on the up-swing.